Through my work and social media outlets,
I receive weekly messages from parents, caregivers and pedagogical professionals expressing their journey with having (or working with) a child with a visible difference, being on a medical journey or dealing with disease. I receive vulnerable expressions of how they find ground in seeing representation of what life of their child can look like, not despite of their conditioning, but more so because of it.
I am deeply grateful for these messages and want to be the support that my parents have missed while raising me. My experience is coupled with solic study and expertise.
expertise and experience
With over 28 years of being on a medical journey, having dealt with setbacks, insecurity but also healing and many successes, I know like no other what it means to walk a path with (inexplicable) symptoms, making medical choices, finding trust, dealing with medical trauma, establishing a healthy relationship to doctors and the medical system. My experience is backed by my loving parents who have been through all of it with me, who devotionally documented my medical journey and who faced hardship in the judicial aftermath of laser treatment gone wrong. Their strength, commitment to care for me and loving attention is what I transfer through my embodiment.
With my inexhaustable passion to guide others, I love to transmit my lessons from my journey to those having just embarked on this journey. I hold a MSc in lookism and perception and conducted academic research on the experience of people with a visible difference in society, I bring an expert view on the workings of discrimination, stigma, inclusion and diversity. I studied child development through Positive Psychology and all my work is trauma-informed.